Research Article
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Examining the Factors Influencing the Stress Levels in Families of Children with Autism

Year 2023, Volume: 6 Issue: 12, 229 - 253, 31.12.2023

Kübra Arslan Tarık Tuncay

https://doi.org/10.35235/uicd.1318620

Abstract

This study examines the influence of coping strategies, social support systems and family resilience levels on the perceived stress levels of Turkish families of children with autism. The sample of this cross-sectional study consists of 213 mothers and 87 fathers of children diagnosed with autism. Perceived Stress Scale, Coping Styles Scale Short Form, Revised Parent Social Support Scale and Family Resilience Scale Turkish Forms were used. In the analysis of the data, the normal distribution was examined and used in multiple regression analysis techniques for predicting the dependent variable based on the independent variables to understand the relationship between dependent and independent variables. Regression analysis revealed that the number of children and diagnosis age of the child with autism positively affect the family stress level. All of these variables explained 14% of the total variance. One of the most important findings of this study is that the stress levels of mothers were found to be higher than fathers. Parents' age, education, income level, number in the birth order of child with autism, time of autism noticed, active and passive coping methods and family resiliency negatively affected family stress level. In addition, further study is needed to investigate psychosocial interventions that decrease stress levels and facilitate active coping strategies among families who have children with autism.

Keywords

Autism Families of children with autism Stress levels Coping styles Social support

References

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Oti̇zmli̇ Çocukları Olan Ai̇leleri̇n Stres Düzeyleri̇ni̇ Etki̇leyen Faktörleri̇n İncelenmesi̇

Year 2023, Volume: 6 Issue: 12, 229 - 253, 31.12.2023

Kübra Arslan Tarık Tuncay

https://doi.org/10.35235/uicd.1318620

Abstract

Bu çalışma, baş etme stratejilerinin, sosyal destek sistemlerinin ve aile dayanıklılık düzeylerinin Türk otizmli çocuk ailelerinin algılanan stres düzeyleri üzerindeki etkisini incelemeyi amaçlamaktadır. Bu kesitsel araştırmanın örneklemini otizm tanısı almış çocuğu olan 213 anne ve 87 baba oluşturmaktadır. Araştırmada Algılanan Stres Ölçeği, Başa Çıkma Tarzları Ölçeği Kısa Formu, Gözden Geçirilmiş Ebeveyn Sosyal Destek Ölçeği ve Aile Yılmazlık Ölçeği Türkçe Formları kullanılmıştır. Verilerin analizinde normal dağılım incelenmiş ve bağımlı ve bağımsız değişkenler arasındaki ilişkiyi anlamak için bağımsız değişkenlere dayalı olarak bağımlı değişkeni tahmin etmek için çoklu regresyon analizi tekniklerinde kullanılmıştır. Regresyon analizi, çocuk sayısı ve otizmli çocuğun tanı yaşının aile stres düzeyini pozitif yönde etkilediğini ortaya koymuştur. Tüm bu değişkenler toplam varyansın %14'ünü açıklamaktadır. Bu çalışmanın en önemli bulgularından biri, annelerin stres düzeylerinin babalardan daha yüksek bulunmasıdır. Ebeveynlerin yaşı, eğitimi, gelir düzeyi, otizmli çocuğun doğum sırasındaki sayısı, otizmin fark edilme zamanı, aktif ve pasif baş etme yöntemleri ve aile dayanıklılığı aile stres düzeyini olumsuz yönde etkilemektedir. Ayrıca, otizmli çocuğa sahip ailelerin stres düzeylerini azaltan ve aktif başa çıkma stratejilerini kolaylaştıran psikososyal çalışmalara gereksinim vardır.

Keywords

Otizm Otizmli çocuğu olan aileler Stress düzeyleri Baş etme biçimleri Sosyal destek

References

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  • American Psychiatric Association, (2013). (http://www.autismspeaks.org/whatautism/diagnosis/dsm-5-diagnostic-criteria).
  • Ang, K. Q. P., & Loh, P. R. (2019). Mental health and coping in parents of children with autism spectrum disorder (ASD) in Singapore: An examination of gender role in caring. Journal of Autism and Developmental Disorders, 49(5), 2129-2145. doi: 10.1007/s10803-019-03900-w.
  • Arslan, K. (2020). Otizmli çocuğu olan ailelerin dayanıklılık düzeyine etki eden faktörlerin incelenmesi. Doktora Tezi. Hacettepe Üniversitesi, Ankara.
  • Aslan, Ç.Ç., (2010). Zihinsel engelli çocuğu olan anne ve babaların psikolojik belirtileri, sosyal destek algıları ve stresle başa çıkma tarzlarının karşılaştırılması. (Yayınlanmamış Yüksek Lisans Tezi), Maltepe Üniversitesi, İstanbul.
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  • Bekhet, A. K., Johnson, N. L., & Zauszniewski, J. A. (2012). Resilience in family members of persons with autism spectrum disorder: A review of the literature. Issues in Mental Health Nursing, 33(10), 650-656. http://dx.doi:10.3109/01612840.2012.671441
  • Beşikçi, H. (2000). Otistik olan ve olmayan normal çocuklara sahip anne –babaların kaygı düzeyleri ve aile yapıları. (Yayınlanmamış Yüksek Lisans Tezi). İstanbul Üniversitesi, İstanbul.
  • Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities. 17(4).
  • Bromley, J., Hare, D., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders. Sage Publications and The National Autistic Society, 8(4), 409-423.
  • Carver, C. S. (1997). You want to measure coping but your protocols too long: Consider the brief COPE. International Journal of Behavioral Medicine, 4 (1), 92-100.
  • CDC (2018). Centers for Disease Control and Prevention. https://www.cdc.gov/ncbddd/autism/addm-community-report/documents/addm-community-report-2018-h.pdf
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  • Cridland, K.E., Jones, C.S., Magee, A.C., & Caputi, P. (2014). Family-focused autism spectrum disorder research: A review of the utility of family systems approaches. Autism, 18(3), 213 –222.
  • Dabrowska A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and down syndrome. Journal of Intellectual Disability Research, 54(3), 266-280.
  • Dale, E., Jahoda, A., & Knott, F. (2006). Mothers' attributions following their child's diagnosis of autistic spectrum disorder. Autism, 10, 463-479.
  • Davis N.O., & Carter, A.S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278-1291.
  • Dolbier, C., & Steinhardt, M. (2008). Evaluation of a resilience ıntervention to enhance coping strategies and protective factors and decrease symptomatology. Journal of American College Health, 56 (4).
  • Duarte, C. S., Bordin, I. A., Yazigi, L., & Mooney, J. (2005). Factors associated with stress in mothers of children with autism. Autism, 9(4), 416–427.
  • Dunn, M. E., Burbine, T., Bowers, C. A. & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37, 39-52.
  • Ekas, Lickenbrock, & Whitman (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40(10), 1274-84. https://doi.org/10.1007/s10803-010-0986-y.
  • Eskin, M., Harlak, H., Demirkıran, F., & Dereboy, Ç. (2013). Algılanan stres ölçeğinin Türkçeye uyarlanması: Güvenirlik ve geçerlik analizi. New Symposium Journal, 51(3), 132-140.
  • Estes, A., Munson, D., Dawson, G., Koehler, E., Zhou, X., & Abbot, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13(4), 375–387.
  • García-López C., Sarriá, E., & Pozo, P. (2016). A multilevel approach to gender differences in adaptation in father-mother dyads parenting individuals with autism spectrum disorder. Research in Autism Spectrum Disorders, 28, 7-16.
  • Glidden, L.M., Billings, F.J. & Jobe, B.M. (2006). Personality, coping style and well-being of parents rearing children with developmental disabilities. Journal of Intellectual Disability Research, 50(12), 949- 962.
  • Görgü, E. (2006). 3-7 yaş arası otistik çocuğa sahip olan ailelerin algıladıkları sosyal destek düzeyi ile depresyon düzeyleri arasındaki ilişki. (Yayınlanmamış Yüksek Lisans Tezi). Marmara Üniversitesi, İstanbul.
  • Gray, D. (2006). Coping over time: The parents of children with autism. Journal of Intellectual Disability Research, 50(12), 970-976.
  • Hartman, A. (2012). Autism and its impact on families. Master of Social Work Clinical Research Papers. Paper 35. http://sophia.stkate.edu/msw_papers/35
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Details

Primary Language English
Subjects Family Sociology , Sociology of Family and Relationships
Journal Section Articles
Authors

Kübra Arslan 0000-0003-4916-8317

Tarık Tuncay 0000-0002-9447-6717

Early Pub Date December 31, 2023
Publication Date December 31, 2023
Submission Date June 23, 2023
Acceptance Date December 8, 2023
Published in Issue Year 2023 Volume: 6 Issue: 12

Cite

APA Arslan, K., & Tuncay, T. (2023). Examining the Factors Influencing the Stress Levels in Families of Children with Autism. Uluslararası İnsan Çalışmaları Dergisi, 6(12), 229-253. https://doi.org/10.35235/uicd.1318620
AMA Arslan K, Tuncay T. Examining the Factors Influencing the Stress Levels in Families of Children with Autism. Uluslararası İnsan Çalışmaları Dergisi. December 2023;6(12):229-253. doi:10.35235/uicd.1318620
Chicago Arslan, Kübra, and Tarık Tuncay. “Examining the Factors Influencing the Stress Levels in Families of Children With Autism”. Uluslararası İnsan Çalışmaları Dergisi 6, no. 12 (December 2023): 229-53. https://doi.org/10.35235/uicd.1318620.
EndNote Arslan K, Tuncay T (December 1, 2023) Examining the Factors Influencing the Stress Levels in Families of Children with Autism. Uluslararası İnsan Çalışmaları Dergisi 6 12 229–253.
IEEE K. Arslan and T. Tuncay, “Examining the Factors Influencing the Stress Levels in Families of Children with Autism”, Uluslararası İnsan Çalışmaları Dergisi, vol. 6, no. 12, pp. 229–253, 2023, doi: 10.35235/uicd.1318620.
ISNAD Arslan, Kübra - Tuncay, Tarık. “Examining the Factors Influencing the Stress Levels in Families of Children With Autism”. Uluslararası İnsan Çalışmaları Dergisi 6/12 (December 2023), 229-253. https://doi.org/10.35235/uicd.1318620.
JAMA Arslan K, Tuncay T. Examining the Factors Influencing the Stress Levels in Families of Children with Autism. Uluslararası İnsan Çalışmaları Dergisi. 2023;6:229–253.
MLA Arslan, Kübra and Tarık Tuncay. “Examining the Factors Influencing the Stress Levels in Families of Children With Autism”. Uluslararası İnsan Çalışmaları Dergisi, vol. 6, no. 12, 2023, pp. 229-53, doi:10.35235/uicd.1318620.
Vancouver Arslan K, Tuncay T. Examining the Factors Influencing the Stress Levels in Families of Children with Autism. Uluslararası İnsan Çalışmaları Dergisi. 2023;6(12):229-53.
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